Viewing 7 posts - 1 through 7 (of 7 total)
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  • #34274

    junebeatle
    Participant

    Hi,
    I was curious to know if anyone has been able to successfully quit Benzodiazepines usage from a very, severe anxiety/agitation disorder? I’ve been on Valium for 7.5months down to 7.5mg past month after 46 sessions of TMS. My TMS psychiatrist wants me to slowly taper to zero & then come in to fix the mess of withdrawal. Mainly because I have Bradycardia from it & didn’t before. I tried 5mg last night and feel like I’m going to crawl out of my skin & feel like my skin is burning sensation. Successful stories would be helpful?

    #34275

    entenmk
    Participant

    @junebeatle-

    I wish you all the luck with that. Having been on benzodiazepines before, I know the withdrawal can be tough. Diazepam (Valium) fortunately has a very long half life so stepping down should (theoretically) be easier than a shorter acting like Alprazolam (Xanax).

    Make sure you take extra good care of self and practice good self care- I know you can do it – just realize like the TMS- it’s going to have its ups and downs.

    Let me know how it goes ! Kyle

    #34282

    junebeatle
    Participant

    @entenmk, I can’t get below 7.5mg without losing it. My TMS psychiatrist said we can try another round to try to get off since I can’t cessate on my own. It’s hard because my anxiety went to like a whole other level last year with pacing around (like Akathasia, but not medication induced. I also have a movement disorder that I’ve had for 10 years under good control and it became around the clock last year. Part of me wants to accept that I have to be on Valium & the other half is like the memory loss/brain fog is unreal. I’m so fatigued every day from it. How long did you take a Benzodiazepine? I’ve read that don’t take them long-term if you can help it…due to tolerance & other issues.

    Hopefully next round gets me off! I did go from 15mg to 7.5mg…I just don’t know about the movements, TMS excerbated those during, better afterwards.

    #34335

    dwstuhr
    Participant

    Since TMS ramped my intrusive thoughts and anxiety up so bad, I have to take benzos regularly. I previously seldom took them. I soooo regret doing TMS. I’ll tell as many people as I can. Beware of TMS.

    #34336

    junebeatle
    Participant

    @dwsthur, I wrote to you on your other post! I’m so sorry for your TMS experience. My life was saved by TMS, so I very much had the opposite experience. I had severe anxiety previously to TMS and was actually able to cut nightly Valium in half. I also had zero thoughts prior to TMS as my depression was so bad I thought I had dementia and my memory improved quite a bit (as much as one can on a daily benzo)
    Have you considered other options to help yourself like Ketamine, Psylocibin trials are helping depression/anxiety, or maybe even keto (plant based & high Omega-3’s) as it’s very brain healing. TMS helps a lot of people and I wish they were able to do it with a PET scan then it would be more individualized to inhibit overactive regions & activate under active areas.

    Again I’m sorry you got worse, do you think if you continued on it might have resolved and were they doing bi-lateral? Also Neurostar? I’ve heard bad things about Brainsway in regards to agitation/anxiety. Good luck on healing

    #34337

    dwstuhr
    Participant

    Hi junebeatle..I appreciate your input and advice. I realize that is may work for some people. That is hopeful, but it is designed for depression. Many people on this forum have not had good results for anxiety. It’s been 6 weeks since my treatment and I’m 2 to 3 hours at best sleep per night. Fear was n issue with me before, but now its terrible. I’m praying for better days. I absolutely want people with anxiety disorders to be aware. Thanks

    #34340

    junebeatle
    Participant

    Hi@dwstuhr,
    OMG! That’s horrible! Again I’m sorry for your experience. I understand a little because of my experience with a Ketamine infusion that left me much worse in regards to anxiety.
    Have you contacted whoever treated you to let them know what it did to you? I have read about all the folks who ramped up anxiety or had memory loss and I almost decided against it myself, but I had exhausted every option (medication class, ketamine, etc) available.

    I hope you find some relief or your brain goes back to baseline. Even the benzo doesn’t give you sleep? (i know it’s not restorative sleep, I use Valium for sleep) I wonder why it does that to certain people and not others? Like I said my anxiety is how I got into major depression (along with a debilitating movement disorder) and both improved. When all other modalities made me worse.

    Could you see a functional neurologist for help to find see what it did to your nervous system & if they can get it to calm down. I don’t think it’s fair to live like that when you wanted help with your brain.

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