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  • #33719

    terrig
    Participant


    today will be treatment #27
    and I feel exactly as I did at treatment #1…
    the tech suggested that I might have a “delayed” reaction…(what else can she say)
    I guess tms doesn’t work for everyone because it isn’t working for me.
    tg

    #33721

    denassist1984
    Participant

    Hi Terrig. Just curious about what type tms you are having. Neurostar? Brainsway? MagStim?

    #33722

    terrig
    Participant

    neurostar.

    #33723

    Jen57
    Participant

    No terrig, you may still improve. My daughter, who is a college student, has recently undergone 36 neurostar treatments. She improved the most during her last six tapering sessions. According to her, she felt a very,very subtle improvement around her 25th session. After her second to last taper, she said “mom, I feel a whole lot better”. That improvement seems to be lasting. She is not and was not on any antidepressants during treatment (ssris and snris have caused her to experience side effects rangeing from severe stomachache to seratonin syndrome).

    #33725

    ErinC
    Participant

    It won’t work for everyone, but what Jen57 says is encouraging. There’s still time to see improvement! Good luck!

    #33726

    terrig
    Participant

    thank you both.. especially jen57… that is very encouraging. 🙂
    I only hope that will happen to me too.

    #33727

    terrig
    Participant

    well today will be my 31st tms treatment—and each time I still have hope that I will walk out of the office feeling better… I guess my expectations were way to high- I guess from all the reading and from the book I read
    3000 pulses by Martha Rhodes gave me this encouragement. I feel like writing a book 3000 Pulses Later – and it didn’t work. I think when advertising this neurostar treatment the physicians should be more practical – and say it might not work for everyone…but its worth a try–NOT you’ll feel better by treatment #20.
    thank you for letting me vent.

    #33728

    walkinthru
    Participant

    Hey terrig,
    Hang in there! I’m praying for a good outcome for you. Tms is a huge step and a huge commitment. I hope you recognize that you are trying hard to get better. Depression sucks big time. I’m going to keep on trying and I hope you always do, too.

    Today was day 2 of Tms for me. I’m on leave from work. And I’m very anxious today. Not sure if it’s from Tms or situational. It doesn’t feel good to not work.

    Take care! You are not alone!

    #33734

    terrig
    Participant

    thanks for all your input… im starting to taper off with the treatments
    the dr thinks maybe I should do some more treatments on the right side of my brain
    however I question that only because I know the right side is primarily for anxiety – which I can deal with.
    its the depression that’s wicked and knocks me on my butt 🙁

    #33735

    Jen57
    Participant

    I would do what the doctor recommends. The doctor should know more than us. Maybe the low frequency, right sided treatment will help with depression too.

    #33736

    terrig
    Participant

    hi jen57
    I hear what your saying but obviously nothing is guaranteed… I have always been resistant to medications and now apparently im resistant to tms and if wanted to go further like ECT—I probably would not succeed at that either. The truth is I was born this way…from when I was a little girl I remember feelings of depression and it never left me— oh there were some small periods in my life that it was under control
    and even now its under control — I just wanted more… I just want to wake up one day and not cringe
    I want to wake up and feel ok….not tired and like I have heavy boots on – dragging my feet
    showing a phony smile at work.
    how is your daughter doing? you mentioned she didn’t feel better until the end of the treatment–
    is she ok? please let me know 🙂

    #33737

    Jen57
    Participant

    She still says that she feels a lot better. I’m assuming that it’s not 100% – I don’t know if she even remembers what completely better feels like (she describes a mild depression in high school which worsened during college). Would she even know what completely better is? I wouldn’t know since I have never experienced true, biological depression. Anyways, she is attending her summer class regularly and doing her homework (a major improvement). We would have definitely considered ECT and, if affordable , ketamine and if tolerable, parnate.

    #33742

    terrig
    Participant

    well two more treatments left — and I finally feel ok 🙂
    yeah
    spoke to the dr – and he is recommending booster treatments…
    does anyone know how this works? I tried to google the info but it was hard to find
    and I didn’t ask all the specific questions to dr that I wanted too, like how many times a week etc.
    he said for about a month at a time.
    and for the record – if necessary if i continue to feel okay – like i do
    i will continue to do the booster treatments lifetime (of course if it is covered by my insurance)
    im just afraid of not feeling ok – like in my previous posts
    one day at a time….

    #33746

    jrb923
    Participant

    I had 9 weeks at 3 times a week and then taper and then once a month. I did not get results from TMS- I got a day where I felt better two or three times but that was it. Basically nothing at all. I would say the treatment is harmless so worth a try because some people are helped. My psychiatrist told me that about 30 percent of people who do it are helped by it. I thought it was more than that but the facts are it is 30%. I was desperate enough to try it. I really hoped it would make a difference and I think just having some hope for a while was good.

    #33747

    jrb923
    Participant

    I started w left side treatment and then later got left and right. I do think TMS helped to decrease my anxiety.

    #33750

    terrig
    Participant

    finished the 36 treatments of tms..since there was no improvement-.my psychiatrist feels that tms or ect –(which I don’t even want to attempt at this time) won’t help me.
    that’s what he said!
    now what?

    #33762

    terrig
    Participant

    ok 36 treatment finished…now the dr wants booster treatments
    heres the kicker my insurance wont approve it!
    but they will approve my psych stay if I try to commit suicide again
    I don’t get it

    #33796

    rdmstm
    Participant

    Hello, I’m new here and have completed 30 treatments and still don’t feel any better. I’m just wondering how you’re (terrig) currently feeling? I hope you’ve seen great improvements!

    #33824

    sunnybrook
    Participant

    I just found this site. I hope that you have positive results from the treatment. I just finished #21 and have not felt improvement yet. I am trying not to be concerned.

    #33826

    rdmstm
    Participant

    Hi Sunnybrook,
    I’m sorry you’re not seeing any improvement! It takes a while for some people to respond. It wasn’t until I was completely done with my treatments that I started to feel better. Also, for me it was a slow improvement not like some people who feel a drastic change. I’m feeling so much better today, so don’t give up hope! Hang in there, I hope to hear that you’re feeling better soon!

    #33828

    sunnybrook
    Participant

    Thank you rdmstm. It’s been very frustrating. The staff keeps saying “you seem so much better!” But my husband has not noticed anything and last night my daughter called and finally said “you sound really down, i’ll Let you go”. I finally told the staff lady today “you only see me when I come in and leave – you don’t know.”

    To those of you who have not found relief: it is expensive. I know…i’m paying it and know that I could have used the money for so many other things. I had to tell myself that YOU HAVE to try it. Maybe it won’t Work but at least you can say you tried everything! Keep pulsing – maybe #36 will be the one – or even after!

    #33831

    sunnybrook
    Participant

    I am sorry to hear that you have finished treatment with no relief. I have no doctor prescribing. I saw him once – when they did the initial “mapping”. He never spoke to me, asked me a question and no one introduced him. My TMS office says 100% of the patients have improvement. They keep TELLING me I feel better but I don’t. Yes, they very much oversold this. Today was treatment #24. I am back in bed with covers over my head. They won’t return calls about insurance (they actually tell you they turn their phones off during the day) and will not respond to emails. If I have to ever schedule a maintenance appointment I don’t Know how to reach them. Originally I contacted Neurostar and Neurostar contacted them. Because their phones are off….is this what everyone else is experience is?? And they just close whenever they want – some weeks I did not get 5 sessions because they decided to not come in! The staff wears jeans and t shirts or sweatshirts and one day she had cut off jeans shorts on and a t shirt! Is this the Treatment others have?

    #33839

    acmalki
    Participant

    I too went through about 36 sessions of TMS and saw very little or marginal improvement in my mood. I thought it would be a great alternative to ECT but I’m beginning to think the efficacy numbers are a little inflated. I have no doubt TMS has worked for some, just unfortunately, didn’t work for me. I hope you guys will find something that works for you!

    #33847

    mombad916
    Participant

    I am on day #29 and have had a few episodes of feeling better. It’s been sweet for sure. But it hasn’t been the complete relief and recharge that I thought it would be; I thought that TMS would mean the end of depression and the beginning of a new, happy life. It looks like the reality will be somewhere in the middle. I hope that you have been able to find some healing from your treatment.

    #33977

    beachgal1124
    Participant

    I just finished my 5th week of TMS, and if anything I feel worse, easily irritated and more stressed and cry for no reason at all, which wasn’t happening before I started the treatments. Is there hope of seeing any results after the 6th week. Any advice?

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