Viewing 18 posts - 1 through 18 (of 18 total)
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  • #4849

    patrickjf
    Participant

    Is it normal for the finger and right hand to move during treatment? I am in the 9th day.

    #4850

    Greg
    Participant

    Hi patrickjf,

    Congrats on starting treatment.
    From my personal experience that did not happen to me.
    It’s something that I would talk to you doctor about.

    When they do the set up this is common but I don’t think I have heard of this happening during treatment.
    I am NOT A DOCTOR but you might need a slight adjustment of the coil.

    #4851

    Greg
    Participant

    Hi Patrick,

    Just had my 29th treatment today and I asked about this.
    If your hand is over your heart you might experience some twitching.
    This info is from someone who is very knowledgeable and whom I trust.
    Hope this helps and again congratulations on starting your treatment.
    The best advice I can give you is to be patient.While some people experience relief earlier
    in treatment I didn’t feel anything until my 25th and I have read that some people don’t feel any relief until treatment is over.
    I am rooting for you!

    #4853

    Greg
    Participant

    Just to clarify-if your hand is above your heart.

    #4854

    patrickjf
    Participant

    Thanks Greg. My hand is only a couple of inches below my heart due to being in a reclined position and they use 3 inch pads on top of the arm rests. I don’t know why.

    I only met the Doctor once during the mapping process. He’s not very involved.

    #4857

    Greg
    Participant

    Patrick,
    I think it’s your right, if you feel something is off to be able to talk to your Doctor.
    As you know this is not a free treatment to say the least!
    I know when we are in depression it’s hard to speak up for ourselves .{it was and still is for me anyway}It is important that you feel your treatment is being taken seriously so Please speak up if you feel something is off or have someone that you trust come to a treatment with you.
    For you to have made the courageous choice to get yourself in that chair is awesome!
    It is a big commitment and I applaud you for it.

    Please keep us updated on your progress.

    #4860

    patrickjf
    Participant

    Thanks Greg. I asked and they said it would be 2 or 3 weeks to get an appointment with the Doctor. I don’t think he is very competent with TMS. After his initial mapping on the Neurostar, he came up with a Motor Threshold of 1.37. I believe that is very high and may not be correct. This would cause the intensity to be higher than for most people. The intensity would then be set at 120% of the Motor Threshold. The higher the intensity, the more side effects. He was never able to get a thumb twitch, only movement in the pinky finger.

    #4861

    Greg
    Participant

    No problem Patrick

    I don’t understand a lot about the motor threshold.
    I will say treatment wasn’t working well for me until they turned up the dose.
    The only side effects that I felt were the head tapping which takes some getting used to. Taking some Advil or something like that can help.
    Also had a slight headache but that also went away with time.

    Sincerely hoping this will give you some relief.

    #4872

    colleencasey
    Participant

    Patrick:
    I had to have the motor threshold reconfigured after two weeks. It is your doctor’s responsibility to stay informed of your response to treatment and make necessary adjustments. My doctor checked in every treatment.
    I have to support Greg, although it is difficult, speaking up is the only way to get action whether the doctor likes it or not! It can affect your treatment. You have rights as a patient. Patrick do not settle. There are constructive avenues to get action if you need to use them, but first being courageous and insistent, once again because it takes courage to get through each day with depression, is the key. Your doctor has ethical codes of conduct he has sworn to follow. They are posted on line.
    You should not have to wait three weeks to discuss issues with current treatments with your doctor. That is a long time and an irresponsible approach from a professional medical standpoint.
    Again, I will say – do not settle. Sending my support. Keep us posted.

    #4876

    patrickjf
    Participant

    Thanks for responding Colleen. I have talked to the Office Manager as well as to my TMS Technician. My only choices are to continue treatment or quit. Tomorrow is day 11 and there are no other TMS Doctors for 80 miles. I’ll just have to take my chances for a while.

    #4879

    colleencasey
    Participant

    You are welcome Patrick. I understand your position. It seems like no matter what roadblocks we experience, quitting is not an option when we want to get well, so I commend your spirit and persistence. I am hoping for a positive outcome for you. Sending support as you proceed with treatment.

    #4931

    colleencasey
    Participant

    Patrick:
    Just wondering how you are doing.

    #4933

    patrickjf
    Participant

    Thanks for asking. I just completed #16 and the Neorostar Representative was there. They observed me and talked to the Doctor for me. The Doctor is going to do a remapping very soon. I will let you guys know what happened.

    #4934

    colleencasey
    Participant

    Patrick:
    Thanks for responding. This is great news. I am glad you had the opportunity to advocate for yourself. I will look forward to your upcoming posts.

    #4947

    Greg
    Participant

    Patrick,

    How are things going for you?
    What a great thing to have a rep help you out!
    Pulling for you my friend.

    #4957

    patrickjf
    Participant

    Thanks for asking Greg. They remapped me on Friday and came up with a much different result. The side effects stopped. I believe I may have had “the Dip” last week after treatment # 15. It lasted 6 to 7 days. I just have to see how things go. I have 10 treatments to go and I believe another 6 spread over time as a weaning off period!

    #4979

    Greg
    Participant

    Patrick,

    Great to hear you are over the dip.

    Please keep us updated as how you are feeling.

    Hope to you my friend and congratulate your self as TMS is a big commitment of time and money.

    But I know neither of those things matter when you get better!

    #5011

    Greg
    Participant

    Patrick,

    How are you doing?

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