Viewing 8 posts - 1 through 8 (of 8 total)
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  • #33961

    bdw73
    Participant

    My wife had TMS treatment last summer ending in August. she did it for her severe depression. since the treatments have been done, she has gotten uncontrollable anxiety, tremors, memory loss, slurred speach depression and suicidal thoughts. our primary care doctor referred her to a neurologist and after 2 MRI’s he diagnosed her with a brain injury due to the TMS treatment. unfortunately there is very little treatments for this other than time and addictive drugs. she is very bad, she has been referred to the carrick institute in Fla as someone that has treated TMS patients in the past. I am at my wits end and it is pushing me into depression trying to take care of her and help her. looking for help if anyone else has gone through this? tips, advice? thanks in advnace

    #33962

    Vasubandu
    Participant

    Hi, I am very sorry to hear about your wife. I am currently getting TMS, and it has completely changed my life for the better. Before starting it, I thoroughly researched by TMS and ECT. I elected against ECT because of its effects on memory. In all of the research I did, which included medical journals, I never came across a single reference to TMS causing brain injury. You would think that as long as it has been used and as many people who have had it, there would be something. You might consider asking the doctor for the basis of his diagnosis and perhaps getting a second opinion. You ought to get the specifications for the treatment as well.

    If TMS did cause a brain injury, it certainly was not normal. I am an attorney, and I would think that if causation could be proven, you might very well have a medical malpractice cause that at least would pay for treatment.

    I really feel for your and your wife’s situation. It sounds horrible. This seems like a tricky question, and you really ought to get some outside answers.

    #33964

    bdw73
    Participant

    Thanks for the reply, we have been to a neurologist at the mayo clinic and the ohio state university both came up with the same diagnosis, that she shows every symptom of post concussion syndrome. they also have not heard of TMS causing this but she has never had a fall or accident and she shows every symptom, of course that does not show up on a MRI or blood test or cat scan she has had all of them. they have referred her to the carrick institute that specializes in brain injuries and the functional neurologist has seen a few of the same cases so she is starting treatment with them today, we will see how it goes.

    I don’t think we would have a case against the provider of TMS since PCS doesn’t show up on a test or proof so it would be impossible, I don’t blame them, I don’t think they did anything wrong, or they did? I just want her to get better, as a caregiver I am at the end of my rope as well and was looking if others have gone through same symptoms
    thank for replying to me

    #34107

    springercali
    Participant

    Hi I’m wondering if your wife found any relief from going to the carrik institute or anything else she’s done? I reacted similarly to tms and have been looking for some help

    #34108

    junebeatle
    Participant

    @springercali, How soon did your TMS symptoms appear? During treatment, right after? I’m very concerned because my main issue before I began was severe anxiety that came on at 40, along with suicidal depression. I’ve already had neuro cognitive changes as a result of what happened in 2018 via neuropsych testing (lowered IQ to high average, everything else was average, except impaired working memory/attention/concentration) I also just so happen to have an involuntary movement disorder & muscle twitching that they put me on Valium for past 4 months. I’m hoping TMS will get me off Valium and improve memory/anxiety/severe depression since I’m a mom to 3 young boys. I tried so many medications that either confused me more or landed me in ER from exacerbating movements.
    I’m on #19 and it’s been up & down. First 9 days were on upswing, joy, memory…then we’ve been all over the place. I’ve read horror stories other places especially folks with severe anxiety that I already had. I’m very sorry for your experience, I can’t imagine hope and then getting worse. ❤️

    #34110

    bdw73
    Participant

    SpringerCali, the Carrick experience did not help at all, she has taken a turn for the worse, they have put her on 2 different meds, this will be the 6th different type of med since the TMS therapy last fall, and nothing seems to be working, she is very suicidal and I have had to get family to come stay with her during the day to keep her safe, my hope is that this latest med will start working once it is in her system, they say it takes 6 to 8 weeks to fully start working, if it doesn’t, I am not sure what the next step is, I guess admitting her into a facilty, I don’t know

    JuneBattle, her symptoms started towards the end of the TMS treatment, it seemed to work on her depression but made her anxiety sky rocket, it has taken 6 months to get her anxiety manageable and now the deVere depression is back. I know TMS works for some people but it definitely made it worse for my wife

    #34111

    junebeatle
    Participant

    @bd73 I’m so sorry for your family. My involuntary movements came back with a vegenance that had been under control with Valium & my depression was so severe yesterday I cried the entire day, so I’m wondering if TMS is making me worse. I’ll throw this out there for your wife, there is a clinical trial in Atlanta for a deep brain stimulation implant for major depressive disorder if medications don’t help. Tell her to keep fighting no matter the pain inside because there has to be something to help her brain. I signed up for the trial myself as a next step, but I have co-morbities so I don’t know if I’ll qualify. Good luck! This disease is awful!

    #34246

    junebeatle
    Participant

    @bdw73, Did the medications work for your wife? I’m almost done with my total of 46 treatments, I was feeling better last week..then took a turn down again with 1 session left. I know medications are individual, but what is she taking if it helps in case I have to re-try that dead end again? I see things clearly so I think it helped something…

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