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  • #5493

    lunarafire
    Participant

    I have had 32 sessions and now feel worse than I did before having TMS. Around the 5th week of treatment, I started to get more anxious. TMS has made my anxiety skyrocket to the point that I have been out of work for over 2 weeks. I constantly feel anxious. After one of my treatments, I had a 2hr panic attack. I was never told that the TMS treatment could actually make me feel worse. Has anyone else experienced this side effect? I also now have insomnia. I never had trouble falling asleep before. Also, a new problem I am having is when I wake up in the morning, I feel panicked. I don’t know whether I should continue or stop before the TMS does more damage. I need to be able to get back to work.

    #5494

    colleencasey
    Participant

    Hi lunarafire:
    Are you having bilateral treatments? My experience with bilateral treatments was just the opposite. Anxiety is treated on the right side of the brain and depression on the left. When having bilateral treatments my anxiety diminishes about 90% and I rarely need anxiety medication. There is a vast improvement.
    What does your doctor say about an increase in anxiety?

    #5495

    lunarafire
    Participant

    Hello,
    I was having bilateral treatments. Because of the increased anxiety, on session 27, the doctor stopped doing left side treatments and is now only doing right side treatments. He believed that would help. That did not. The end of last week, he said it was because I was menstruating the previous week. The increased anxiety continued and today he said my thyroid was to high. I called my thyroid doctor and my blood test came back normal. So every reason he has given me so far has not panned out. I even tried calling Neurostar to see if someone could check to see if I was getting the proper treatments. They said they could not help. They were completely useless. I now need 1mg anxiety medicine multiple times a day. Before TMS I only would take .25 mg at night before I went to sleep for night terrors. I went from having social anxiety to constant anxiety. I need to be able to get back to work on Monday. Getting TMS has been the biggest regret of my life.

    #5499

    Keep_Hoping
    Participant

    lunarafire,

    My anxiety got worse during my tms sessions too. It also messed with my sleep. I had such a hard time getting to sleep and staying asleep. After I finished my anxiety became much less. It went back to what it was before.

    I finished in the middle of May and feel just as crappy as I did before tms. They say that there can be a delayed effect and that results show up weeks or months afterwards. Wish they would have told me that in the promising pamphlet I was given.

    I understand how you feel like this is such a big regret. It’s a total let down as well. So here I am back where I started with even less hope than before.

    I’ve been praying that tms will somehow work for me and all those who are trying it.

    #5505

    lunarafire
    Participant

    Keep_Hoping,
    How long did it take before the anxiety lessened?
    I have having such bad panic attacks. I would welcome how I felt before. At least I was functional before TMS.
    The FDA needs to take TMS off the market. I truly believe it wasn’t tested appropriately.

    #5506

    Keep_Hoping
    Participant

    lunarafire,

    Anxiety is the absolute worse! I think I felt less anxious the first week I was completely finished.

    I agree that the FDA needs to do more testing. It’s the same problem with the antidepressants – they aren’t testing for long enough to see long term outcomes. They take the highest percentage with the best results and only report on that. Some of the drug companies are including the ‘good’ results from people who took a placebo and adding that into success rates. Unbelievable.

    Are they telling you that there may be a delayed effect and you may feel better in weeks or months from now? I feel like I was ripped off. I owe thousands of dollars and still feel terrible.

    I hope your anxiety will improve and you will feel be one of the people this works for. Blessings.

    #5513

    Hashmael
    Participant

    One thing that might be worth considering (though it is an off-label indication) is altering the frequency of the treatment waveform.
    One study (although a very small one) seemed to indicate that patients who responded well to high frequency rTMS responded poorly to low-frequency, and vice versa.

    I don’t know if this is something your doctor is willing to consider; but I’m a bit concerned if they’re attributing your mood changes to your menstrual cycle. If you have already established with your doctor that yes, you have mood swings or anxiety associated with menstruation, then perhaps that is a valid explanation; but if not, I think your doctor is speculating instead of assessing.

    #5523

    colleencasey
    Participant

    Hashmael
    Do you have a reference to that study that you referred to just above my post? I would be interested in reading it.
    Thanks

    #5661

    Papa Peter
    Participant

    I too have been having incredible anxiety like none I have experienced before. I am 73 and am just finishing the TMS tapering…have had 31 total sessions. I actually think that the TMS helped my depression but it left my anxiety alone which probably ended up increasing my experience of it. I never had bilateral treatments because the VA where I get my TMS is not doing any off label treatments. The psychiatrist who is treating me has been wonderfully supportive but I remember her words when we started – that she hoped my depression would be helped and had some fears that I might be left with anxiety. Well that is the outcome.

    I absolutely dread evenings because I know that I can go to sleep only to awake in panic in a couple hours and be stuck in panic all night…then exhausted during the day.

    Has your anxiety dissipated over time? I still have 2 weeks of tapering treatments and cannot imagine surviving for that long.

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