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  • Denaqueenbee
    Participant

    The effectiveness summary was so interesting, that was a great thing to do! I am listed under denaqueenbee, rated 2/5, but I’d now have to say it’s, 1/5. Things have been so much worse since the treatment, but I know it’s all individual based, so I am not blaming TMS. But…. What is so interesting, why did it gave me almost instant relief from severe pain in my hands, a return of severe carpal tunnel, or other nerve damage? The entire time I was getting treatment it was almost gone! After treatments done, when I realized TMS didn’t help the severe depression and anxiety, I thought at least I got help with the pain in hands. (It has to be nerve pain because no amount of pain med will help it, and I was desperate about that problem on top of depression.) HOWEVER, that was short lived, about 7 weeks after treatment ended, the hand pain returned with a vengeance, only to keep getting worse and worse since November 2016. For first time in my life, I know I’ll not be able to continue working, and I am scared to death, (60 yrs old) I am still forcing myself to work in agony while I get testing done ordered by hand surgeon, but I fear it’s causing more damage to force it, I’m on keyboard all day long. But fear keeps me from doing what I should do, NOT WORK until we know what to do after final test next week. I fear if I call in or leave due to hand pain, my employer will know I’m headed toward disability, as we are in severe shortage of staff. He knows I have the problem but thinks TMS helped. Unless I’m wrong, I figure until a doctor orders me not to be on keyboard all day, I might risk being able access my Long Term Disability, 3 month waiting period. I have no idea what to do, the depression is so bad I’m can’t function, no medication helps. I gave up on med before TMS, sick of them all, nothing worked, but as Last resort in December, I did try an MAOI, Parnate, but it dropped blood pressure really bad for days, so I couldn’t take it. I’m just giving my experience for others that might need the extra info, especially about the help with pain!

    Bless each of you!

    in reply to: Withdrawal After Treatments Done #5641

    Denaqueenbee
    Participant

    I had such hope in TMS, and I gave it 100%, I completed all sessions, and it did help with horrid hand pain I was experiencing, but it returned with a vengeance about 2 months after TMS. I pray you are one of the lucky ones that experience the “after” effect, I’ve heard up to 6 months later it can just suddenly kick in!
    I was not so lucky, TMS for some reason, made my depression worse, I had trouble with short term memory and thinking straight, for the first time ever I was leaving letters off words, simple words that I type all the time, it was scaring me. It has settled down a bit, but I never thought TMS could make things worse, I truly expected it to work (unusual for me to be so positive). For me to spend that kind of money, over 6k, out of pocket, took a huge leap of faith, and I honestly thought it was my answer to prayer. I just wanted you to know you are not alone in negative effects after treatment stops, but I want you to EXPECT it’s going to still be effective, your brain needs to settle down a bit from what I’ve heard.

    I wish you the best!

    Denaqueenbeee

    in reply to: What the Hell? #5588

    Denaqueenbee
    Participant

    Dear Leveon, I hesitated before responding to your post because I can’t give the positive feedback I know you need. However, I think we all need to share no matter what our experience was with TMS. We are all different, the more people getting the treatment and posting their individual outcomes, the more we know. I never really saw negative comments until after I had started treatment, I’m glad because I needed to try it, I stayed off the forum for a couple weeks at that time.

    For myself and TMS: I was so, so excited when I finally made the commitment and started TMS. I never had such peace and a feeling no doubt I was to try it, almost a supernatural expectation that it was going to be my miracle. Everything sort of fell into place as I have to work at the same time, and taking time during the day is horrible, (if you call it work, basically I’m faking it all day pretending I’m something I”m not and that doesn’t make me feel very good about myself) . I even had peace about spending the 6k I couldn’t afford to spend, so I just KNEW THIS WAS MY MIRACLE! (

    My doctor has referred me to TMS 2 years prior but no one would accept insurance to help with cost, so I had been researching and noticing there were more people having good results. After starting TMS, I made an appointment with this doctor letting him know I finally did it, and wondered what others were telling him of their experiences with TMS. Oh dear, this is when he told me he had never had a patient go through TMS? HE REFERRED ME TO GO BUT NEVER HAD ANOTHER PATIENT USE TMS? What the heck?

    Anyway, I gave it 110%, never missed a session, positive attitude, we did both sides of the brain due to the severe anxiety, but it didn’t work for me. I was so crushed. I do think you will feel a wild ride of emotions, and I knew it was possible that it wouldn’t work, but I didn’t know it could make things worse, which is seems to have done.

    Each of us will respond differently, but it appears my thinking was left with some short term memory issues which seems to be getting better, but something has changed and I’m worried. When I type at work, I find myself leaving letters off simple words, which is not something I ever did, but I kept praying I’d get the delayed positive reaction as some do. It’s now been about 2 months now since I finished, and the depression is worse than I’ve ever felt in my life, but it could be due to failure after such hope, but something doesn’t seem right?

    Reality check, now I’m now really concerned since my employer knew I was going for TMS ( leaving daily you have to tell them something), last week I was passed over as a senior employee for responsibilities taking over from my manager after his sudden departure last week. It went to my co worker who has been here less time than I, and I don’t blame them. It’s obvious I have trouble with organization, productivity, but it was like a reality slap in the face. Now I fear I need to get back to a doctor quickly to document how bad things are in case things are falling apart here as they appear to be, as there is no way I can get another job feeling as bad as I do physically and mentally, at 60 years of age. (TMS helped amazingly with pain in my hands, nerve damage. But just last week, the pain suddenly returned)
    Leveon, I hope you have an awesome response to TMS, as SO many people do! Do not give up, just expect the wild emotions are going to happen and it won’t be as scary, it should level out. Please keep everyone posted! Who knows, maybe I’ll even have a turn around myself nothing is impossible……….
    Dena

    in reply to: Major Dip Post TMS #5583

    Denaqueenbee
    Participant

    I have not been on the computer in a few days, and it was so nice to both posts with support! Thank you so much! In all the research I had done,I never heard of TMS making things worse. One day, at beginning of my TMS, I found the Forum and then saw someone said it did make their anxiety worse, and that scared me, so I stayed off the forums for a bit. I had 31 treatments, they weaned the last few, staggered by about 4 days apart because my insurance won’t pay and I already spent 6k. I Now my benefits are exhausted for the year, Insurance was so screwed up, I feel such hate, and I have never been so hateful feeling. They are enough to make you feel that way LOL. (really not funny though)

    TMS place gave me another appointment with the Psychiatrist with no additional charge for tomorrow. I am going to let him know, and how scared I am. It REALLY DOES Seem emotions are all over the place, isn’t that strange? I’ve noticed problems with my short term memory, I think (hope) it will settle down. (this is something I’ve never experience before TMS?) I am praying it’s that my mind is healing, and it’s neurons firing all over the place in my brain. I don’t feel quite as agitated, but I might in an hour!

    Those torture feelings of ” something is weird with my brain that can’t be fixed” are just terrible. I still have hope, I won’t give up, I’ve heard too many people say it was months after TMS they really noticed changes. But I’m back to that ” what to do now “, I don’t know how I’ll ever make it in life, at 60, I’m ready to just give up. What life? Depression robs us of “who we are” and makes every day just a huge chore to get through. Thank you again for you Posts…………….. It really helped this morning.

    Dena

    in reply to: Is this the Norm? #5578

    Denaqueenbee
    Participant

    Hi Dee, I too, am 60 now and tried TMS and so far have not gotten the response I prayed for. What the heck could be so wrong it doesn’t work for us? Therapy? Maybe for some, but most of us know what we should be thinking, and we just can’t, when I go, the therapist is as stressed as I am because there are no answers!

    I know we’ve all tried so many things before TMS, so it’s not like we’re new at this. I’m wondering if you get results AFTER TMS, I hear it can happen within a few weeks, and I’m praying things change for me too, I’ve been done for 2 weeks now? I feel mean, and that is a new feeling for me, so I’m worried I’ll feel mean the rest of my life. LOL. If it wasn’t so awful maybe it would be funny. I wondered how you were doing?

    Dena

    in reply to: What Are the Potential Long-Term Side Effects? #5577

    Denaqueenbee
    Participant

    Is it possible TMS can cause change in personality? I’m done with treatment just recently and find myself feeling differently and not in a good way. I feel mad at everything and everyone and about ready to snap. Maybe it’s because I didn’t get the results yet I was hoping for and the insurance circus enough to drive anyone over the edge?

    I’m hoping it’s that my brain is coming back to life and things may settle down, but I have never been angry at my mom, I can’t understand it. Why? There is no reason for it. ?? Maybe it’s more that I’m angry that I can’t keep up the pace I’ve been keeping for 12 years of going up every weekend and then dragging myself to a boring job I struggle at everyday and there is no hope to change the situation. (she lives an hour away and is 82 today)
    I’ m beyond blessed to have my mom who is a wonderful person and I want to see her, I just don’t know where these feelings of anger are coming from, it’s bothering me. I worry that TMS has caused a change in my brain, maybe my brain has a problem and the TMS affected me differently. You know how THOSE thoughts creep in? If it was a couple of days, I’d not be so concerned, but this has been a couple of weeks now that I’ve been like this. I’ve never experienced these kinds of feelings and I’m worried it’s my new norm.

    Dena .

    in reply to: Approved for Treatment #5576

    Denaqueenbee
    Participant

    I think we ALL are terrified when going through TMS, that we will be the one it doesn’t work for. We don’t want to be fearful, at least for me, because thinking the fear may cause the treatment not to work. By the time we get to trying TMS, we are pretty desperate, and it’s only natural to feel the fear and dread of what to do if it doesn’t work. I fought it the entire time.

    Most people I had contact with said the same thing. I just finished treatment, and though I didn’t get the response I hoped for, I am hearing from many places and people, it isn’t until after TMS is done that changes happen. I had a call yesterday from a TMS place I was trying to get approved through but ended up using someone else. They were calling to follow up, and I mentioned this to her, that I was done, but upset as it didn’t seem to work. I mentioned I was still trying to hold on to hope for delayed response, and she told me many, many of their patients had this same delayed reaction. So, don’t give up, even if you don’t feel it’s working as you go through the process.

    I think the TMS must be doing something still because my emotions are all over the place , so I’m praying things are changing and eventually will settle down and I have positive outcome. If not, at least I tried.

    Dena

    in reply to: What to Do AFTER TMS? #5573

    Denaqueenbee
    Participant

    dear kate, and martha………. Kate, I’m so, so sorry you didn’t get results, I’m in that same position right now, and now those thoughts about what did I do wrong to have it not work, I really, really thought it would and I hear there are so many that don’t get feel help until after TMS, some even months later, try to not give up. My question, for Martha or anyone, I’ve exhausted my TMS, and I can’t afford more, especially if it’s not working or going to make it worse, however , they offered and encouraged me to come a couple times a week, at 100.00 a session, trying to help me, but I don’t know what to do. I stayed home this weekend instead of forcing myself to go up to my mom’s as I usually do, and I can’t think at all. I have not done ONE lousy thing, not that I ever do, but this is even worse.

    What to do………………….. I’m so confused, could TMS really be affected me badly, that I an the exception and it’s made my brain worse? I feel some if not all mental issues are result of extreme water contamination as a child on a Marine Base Camp Lejeune NC. Before that came out, I had pinpointed that exact time that I changed from being an happy, energetic child to extremely lethargic, anti social, lazy, and and just “not right”, so there is that fear those toxins ruined my brain.

    Kate…………. I hope things turn around, keep posting, we are all watching. I am praying I have a miracle post to post soon too. Martha is a blessing…………………… everyone on this forum is a blessing, I wish we all had answers for each other!!!!
    Dena

    in reply to: 3000 vs 5000 pulse sessions #5572

    Denaqueenbee
    Participant

    Hi Sevn Sevn………… I wondered how you are doing after your TMS. I am just finishing, and praying I am one of those that gets results after TMS stops because I actually feel worse. I had trouble with focus before, but now I feel like my brain is shutting down, and I’m scared. I never thought it could back fire. Of course, I am now 60, and I have been severely depressed with extreme anxiety since I was a child, and awful chronic pain for 16 years, it may take more time, my biggest fear is I can’t be helped, and I don’t know how I can live like this. I want so badly to know what it’s like to feel alive before my life is over.

    I happened to see your post and wondered how it all turned out for you?

    in reply to: New to Forum, so many questions…………… #5571

    Denaqueenbee
    Participant

    Hi ! I keep starting new posts with different topics, this is only forum I’ve ever done, so I’m not sure if I should have just used my first post and worked off it? Oh geez. I wondered if anyone might have info about a person who must take pain med, and opiate , would have brain so affected that it causes TMS not to be effective.

    I was taking less and less, but then had a flare up and had to go back up some, and I know the up and down isn’t good, but I won’t take it if I don’t need it. TMS has HELPED the pain in my hands and arms that was so unbearable, even with med, I was about to have a breakdown. no one knew what to do, but throughout this whole process, my hands are 80% better, I hope they stay this was after I stop going for treatment. I’m just so worried something I’m doing is making the treatment not work. Does anyone have an idea of the percentage of people who experience results only AFTER the treatments are done?

    Thanks everyone

    Dena

    in reply to: Last TMS Treatment and faith faltering , is there still hope #5570

    Denaqueenbee
    Participant

    Thank you for taking time to answer my post. I really have heard from more than one person, the effects can last up to a year, so neither of us need to give up, I have been really trying to get more nutrition, but it’s hard I just don’t feel like eating, don’t eat crap, just don’t really want to eat. I think I took too many supplements this past week trying to cram in any help for my brain and that didn’t help matters. I’m so mad, I don’t eat but do not lose one pound!

    These last few sessions, they bumped up to 5000 pulses on the left side but dropped the right side which is the side that leave me feeling calm, so I think the agitation I’m feeling might be due to the increase and no balance from right side. .

    I know I wasn’t expecting such a change to have me ” dancing and tiptoeing through the tulips, though that would have been nice! LOL. But I truly had such faith I’d get a “Lift” from that horrid mess that makes each day so hard. (You know, like oh geez, do I have to take a shower today, how am I going to get through the work day, and hide in isolation as soon as I can. I can’t even have a decent phone conversation with my own mom. ) I do fear the pain med and Xanax are big issue, I feel so unwell physically every single day, but they need the med I was taking when I went for assessment. It did sort of bug me about my thumb not moving, what if I have a weird brain and they don’t know it, so wrong area was being done this whole time? 16 years of chronic pain and stress trying to work and not doing very well, I fear may have caused such damage to my brain, on top of already struggling issues since childhood. I really never gave possibility of something getting worse with TMS a thought! But my thinking is so jumbled, and just feels different in a bad way, is scaring me. I didn’t have focus to start with, but?

    TMS place talked me into coming back for a couple more sessions to wean down more , gave me a deal financially, and they would get me 2 more visits with the psychiatrist for no charge, so I guess I’ll do it. I hope the thinking will clear up as we end treatments, and I hope YOU get results too. It’s amazing how it seems most people don’t really get results until the end, and like you, I think the let down is contributing to this feeling, so much money I couldn’t afford to spend. WE MUST KEEP HOPING !!!!!

    Please keep us/me posted on how you’re doing or if you hear of other cases that things change AFTER TMS has finished! Bless you!!!!
    Dena

    in reply to: New to Forum, so many questions…………… #5545

    Denaqueenbee
    Participant

    Oh my gosh Colleen, I cannot put into words just how much your post meant to me today, and the timing could not have been better. THANK YOU- THANK YOU- THANK YOU!

    I’m down to my last 6 treatments, and was losing the faith and hope I had mustered up to do the TMS, which was the most FAITH I’ve had in my life to do ANYTHING. I have been telling everyone of my leap of faith as I was determined to have positive outcome. But………the last weeks have been going downhill, in fact I feel really agitated and finally told them I was worried on Friday. I thought for sure by this point things would be better, and I never ever thought TMS could make things worse. Hearing you say it was not until AFTER TMS that things got better gave me the most tremendous boost of faith, and hope I needed today. I heard a few others say this, but forced myself to stay off the forum after reading some negative reviews that I had never seen up to that point. I printed your message and put it right in front of me to read over and over.

    I’m no expert, but I keep thinking maybe because my mind is being stimulated and I’m working the whole time getting TMS could just be causing agitation. Plus, I’m sure there is that subconscious fear of what the heck to do if this fails, and how I’m going to tell the hundreds of people of told of my Leap Of Faith.

    God bless you……………again, the timing of your message that came through my email was nothing less than a miracle today!

    Dena

    in reply to: What If I Can't Cover The Cost of TMS Therapy? #5538

    Denaqueenbee
    Participant

    Hi Seraphita, I am in smack dab in the middle of TMS Treatments, and they finally worked it out with my insurance to cover Part of it, but I still coughed up close to 6k at the beginning. Ouch. It was scary, I couldn’t afford it, but I was ready to try anything. I have to work everyday, and I can’t stand it, but thank God, I am able to do the treatments by taking a longer lunch hour, the place is only 10 minutes away. I had been researching TMS for a long time, and was seeing mainly positive reports, it is only JUST recently I’m seeing these negative reports, which of course is making those horrid thoughts: “what if I’m one of the ones it doesn’t help feeling” 10 times worse.

    The final straw for me to spend the money: I recently realized I had to do something, ANYTHING, or I’d be facing the biggest fear of my life, which is letting an aging parent down when they need me. The fear of how I couldn’t handle that and what it might lead to, scared me. I had hoped I’d be able to pull myself together when I was needed, but I realized I was wrong, really wrong, with my father’s recent passing. I couldn’t function to handle much of anything, and I saw what his wife had to deal with, and knew I couldn’t have done it. I was able to act and did manage to be supportive, but I was ready to collapse, call it quits, when the Lord stepped in and took Dad on home. But I am now the ONLY one my wonderful mother would have to rely on, as well as Dad’s Widow, and I can barely make it through a day. Mom is now 81, lives an hour away but still the most active person I know, who takes care of her home, and all problems of life on her own and is even my support system. I know things can change and will, and I don’t have a clue what the heck I’m going to do. I go stay the night on weekend, come home 10pm Sunday night to start the misery work week again…ugh . (it takes me all day to get out of bed and drive up there though) So, the thought of not being able to function when she needs my help, pushed me to fork out the money and pray with every ounce of energy I can muster up that this will work for me. It’s the biggest step of FAITH I have ever taken in my life. I still have hope for a good report in the end. I wondered if you were ever able to try TMS? I’m so sorry about the money, it’s terrible the Insurance doesn’t cover it fully. Our medical system is a disgusting mess……… I’m sorry, I did not mean to write so much.
    Dena

    in reply to: New to Forum, so many questions…………… #5537

    Denaqueenbee
    Participant

    Thank you for your reply! So the TMS did nothing to help your depression? I’m so sorry to hear that, both for you and my hopes. I hate having to take the Xanax, sometimes I wonder if it makes the depression worse, but when anxiety is so bad, it’s the only relief! That’s enough to drive us crazy………. we don’t want to take it, but when it helps, we are so thankful for it! LOL

    God Bless you, and don’t give up!

    Dena

Viewing 14 posts - 1 through 14 (of 14 total)