October 11, 2019 at 2:37 am #34382
Every single TMS website I have found said that TMS is painless. But after a full week of treatment, TMS is the most painful thing I have ever been through (and I almost died of Appendicitis). I literally think of my daily treatments as my daily torture sessions. I have told my doctor, but she says that pain is normal in the first few days. But it has been a full week at it feels as bad as day one. I can’t keep doing this. I sob for 10 minutes every day after my appointments. It is basically torture. I can’t keep doing this.October 11, 2019 at 5:34 pm #34383
Are they slowly increasing the power until you can adjust? If not, they should be. It took me at least 2 weeks to get to the full 120% power because my power prescription was exceptionally high. I took 2 Tylenol an hour before my treatments. I’m now used to it, and it’s definitely not as painful as it was when I initially started. It’s not the most comfortable thing, but it’s tolerable. I would ask them to lower the power % to 50% and work your way up.October 19, 2019 at 3:04 am #34385
Yes, they did slowly increase the power. In fact, they told me that they were increasing it more slowly than other patients, because I was not handling it well. Eventually it got so bad I told them I could not continue, so they decided to remap. After the remapping, it was marginally better, for about a day. Then it got bad again. After a few more days with no increase (I was told I was about at 80%) it was still so painful I asked to stop and cried for ten minutes before I could explain how bad it was. It is like lightning is going through my brain every 20 seconds. I have what I call an anti-Pavlovian response to the sound the machine makes before the pulse starts, because I know that shit mean pain. According to my doc, my response is abnormal, but I attempted to tell them how much pain I was in during the first few days, and they ignored me and said it was normal. My pain is clearly not normal, and people who administer this should know that some people can’t tolerate TMS and prescribe other options. My doctor doesn’t get paid if he recommends ECT or Ketamine, so he hasn’t done that despite that being the obvious course via my research. I feel like I can’t trust my doctor anymore.November 3, 2019 at 3:40 am #34413
I had extreme pain as well but did continue with all 30 sessions. It definitely was torture for me and I too cried every single session. The first time the machine was turned on I actually screamed bloody murder. I wish I had stopped but I trusted my doctors, was desperate for relief and was told it was normal. The migraines I experienced were the worst of my life. It took me over a year to recover from “treatment” and I felt like the walking dead during that time. I could feel no joy. I feel fortunate to have survived the aftermath. Also, I developed extreme sensitivity on the left side of my head down by my teeth. I can feel my teeth now on the upper left side. TMS isn’t supposed to hurt and when it does it means our body wants it to stop. I hope you held firm and stopped further treatment. Know you’re not alone in having this experience. I’ve found that changing my diet and healing my gut has helped tremendously with my depression since our gut makes the majority of serotonin, not the brain. Best of luck to you.
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