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I wanted to let everyone know my wife lost her battle with the severe depression and anxiety since her TMS treatment, she ended her life last Monday on her 55th birthday.
We have been though hell in the year since her treatment, going into 3 facilities that didn’t help, saw neurologist that said her symptoms were the same as a repetitive brain injury, saw a functional neurologist that said the same, went to another Dr that performed TMS to ask for help, she thought she could have been mapped incorrectly. she tried 11 different medications in the past year and she still could not get out of this hell. the only med that seemed to help was gabapentin. the last month she had gotten very dark, and I tried everything I knew how to get her out of it and keep her hope going, flying in friends, leaving letters and notes of hope and love every day, last Monday the suffering came to be too much and she decided to leave us
She was the most amazing woman I knew, we were together 18 years and they were the best 18 years of my life, even though this last year has been unbearable for us both, I never stopped giving up hope or loving her.
Please, make sure you ask questions about this treatment, if you have any shaking or twitching while it is going on, stop it, ask them to re map you, or just look for a alternative
I thank those that replied and tried to help us
Dr seemed to listen, trying some anti psychotic meds to try and get anxiety and shaking under control so they can start treating, her anxiety is so bad that any med does not seem to phase her.
The problem with pursuing legal action is there is nothing physical to prove the TMS was the cause, I talked to a lawyer and he seemed to think it would be tough to prove since she had a history of depression they can claim it just didn’t help her but nothing to make it worse.
It is very frustrating and she is very suicidal, so just trying everything I can to keep her going but it is getting harder and harder each day
Thanks for the inquiries, no she has not gotten any better, in fact she is spiraling out of control and is highly suicidal. she has been in 2 different in patient facilities and no improvement,
Springer Cali, she is experiencing exactly what you are, we did go to a functional neurologist, he did a brain scan and could not point to it, but he stated that all of her symptoms point to a brain injury, the problem is that the only thing to fix that is time, no medicine can, the brain tends to re wire itself. the problem is her symptoms are so bad she just wants to end her life.
We had an appointment with a Dr that used to do TMS, she told us that it sounds like she was not mapped correctly and they hit a spot that made things worse, of course you cant prove that.
We have an appointment with a university hospital this week, I am hoping they can use more resources and come up with a mix of meds or something to get her out of this or at the very least get her off suicidal thoughts.
This has been pure hell
SpringerCali, the Carrick experience did not help at all, she has taken a turn for the worse, they have put her on 2 different meds, this will be the 6th different type of med since the TMS therapy last fall, and nothing seems to be working, she is very suicidal and I have had to get family to come stay with her during the day to keep her safe, my hope is that this latest med will start working once it is in her system, they say it takes 6 to 8 weeks to fully start working, if it doesn’t, I am not sure what the next step is, I guess admitting her into a facilty, I don’t know
JuneBattle, her symptoms started towards the end of the TMS treatment, it seemed to work on her depression but made her anxiety sky rocket, it has taken 6 months to get her anxiety manageable and now the deVere depression is back. I know TMS works for some people but it definitely made it worse for my wife
Thanks for the reply, we have been to a neurologist at the mayo clinic and the ohio state university both came up with the same diagnosis, that she shows every symptom of post concussion syndrome. they also have not heard of TMS causing this but she has never had a fall or accident and she shows every symptom, of course that does not show up on a MRI or blood test or cat scan she has had all of them. they have referred her to the carrick institute that specializes in brain injuries and the functional neurologist has seen a few of the same cases so she is starting treatment with them today, we will see how it goes.
I don’t think we would have a case against the provider of TMS since PCS doesn’t show up on a test or proof so it would be impossible, I don’t blame them, I don’t think they did anything wrong, or they did? I just want her to get better, as a caregiver I am at the end of my rope as well and was looking if others have gone through same symptoms
thank for replying to me