Viewing 14 posts - 1 through 14 (of 14 total)
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  • #5835

    mandm
    Participant

    I am not sure when it started but I am having problems with my memory. I just completed my treatment today. I told the Tech I was having memory problems the last couple weeks and all she said was, I have not heard of that before. I got real scared when I could not remember my height, what year it is and the name of my daughter-in-law among other things. I went through ECT in 2001 and lost a lot of my memory which I have still not recovered from. Anybody else having memory problems?

    #5837

    colleencasey
    Participant

    mandm:

    Memory loss is not one of the identified side effects of TMS. In fact a couple of years ago there was a wave of medical students who underwent TMS before finals because of the increase clarity in thinking and cognition that results from treatment. One quick thought to keep in mind is that if TMS works for you, when your depression lifts, other issues that were previously buried, now surface. It is not necessarily a cause and effect situation resulting from TMS, but an uncovering of other issues that cause the difficulties you are experiencing. There is a lot of information on line about TMS that you could research.
    Not sure what TMS system your doctor administered treatments with, but I know, if it was NeuroStar you could get on their website as it does contain a lot of information and see if it addresses your concerns. 🙂
    Colleen

    #5851

    Dave_Wigfield
    Participant

    To echo colleencasey, memory loss is not an identified side effect of TMS Therapy. Definitely feels like something worth exploring with your doctor, as TMS Therapy should not be causing this issue, and it’s important to rule out any potential causes.

    #5882

    FrankieGarcia
    Participant

    Memory problems can add frustrations to our daily lives and it is not only frustrating, it is frightening. One of my friends was dealt with memory problem. He tried everything to recover from this problem but did not get the right treatment. Finally his family shifted him to a memory care suites NJ where specialized care has been provided to all.

    #33813

    ventri333
    Participant

    I know it’s a little late in the convo, but I whole-heartedly believe that TMS both caused short/ long term memory loss. I never had problems with my memory before doing TMS, and I swear it decreased my mental clarity and memory. So, if you’re feeling this way, just know it can be totally valdiated. I mean I can barely find anything online about side-effects, I mean they’re putting an electric magnet to your brain and zapping the inside of your skull. It hurts, so there has to be some kind of effect.

    #34009

    same here! i’ve always had great memory but as soon as i started TMS my short term memory got completely fried. i cant even remember what someone said to me seconds after they say it. it’s bad

    #34019

    living
    Participant

    Im only at #30 or TMS treatment and am experiencing a concerning memory and concentration loss. Im told by my doctor that although others have had these reactions and sometimes part of what to is referred to as a “Dip” it will only be temporary. Its been 2 weeks with no relief so any feedback from others on this would be appreciated.
    Thanks

    #34020

    mamaarch
    Participant

    My friend did TMS in the fall and noticed about 20 sessions in that he felt different. He is now suffering from memory loss, the worst anxiety he’s ever had, inability to focus, and other symptoms. It seems to be something that happens to a small percentage of people that undergo TMS treatment. For those of you that have suffered from the same symptoms, did it get better? If not, what have you tried? Any help or insight on this would be greatly appreciated. My friend is struggling.

    #34037

    jlc
    Participant

    So sorry for your friend. I’ve noticed I’m not able to call up names like I used to. Probably another side effect of that horrifying TMS. Please tell your friend to try accupuncture. After 13 sessions of TMS which caused me to have a racing heart and the worst anxiety I’ve ever felt, I turned to accupuncture and felt immediate relief. My insurance covers my accupuncture, 20 co-pay. If not insured, I think accupuncture costs 40 a session. Around that. Even once or twice a month is beneficial.

    #34038

    jlc
    Participant

    I also found swimming to be helpful. The local Y’s usually have a swimming pool operating year round.

    #34048

    mamaarch
    Participant

    Thank you for these suggestions. I have passed along this info to my friend and we have found a great acupuncturist in our area for him to try. Have you found that your symptoms are gone now? How long has it been since you did TMS?

    #34389

    JamesHall
    Participant

    I want to chime in here. I realize I am late to the party as well but I want our stories to be told. When I was introduced to TMS, I was told memory loss and other cognitive problems were only possible as temporary symptoms. This turned out to be untrue for me. I got my TMS treatment in June of 2018 and it is now Oct of 2019. I had no history of cognitive problems or any other serious health issues. During treatment I told the clinician that I had memory fog and felt light headed, they again told me it would go away. This continued for the duration of my treatment. I also developed tinnitus during the treatment and they said that would go away and it did not. So let’s fast forward to now, over a year later, I have been diagnosed with cognitive impairment. This included full impairment of my recall memory and impairment of my cognitive shifts, which is multitasking or our kind of desktop space used for memory. I also still have moderate tinnitus that has not gone away. I lost my job because my cognitive impairment is so severe. After I was diagnosed I presented the information to my employer because I was severely struggling at work and it was enough for them to let me go because they claimed they could not make a reasonable accommodation for it. I am going the the best neurology clinic in my state and one of the best in the nation and they have virtually no idea how to treat me and the doctor admitted that we could only experiment with treatments because this is all new territory.

    I have consistently been told and read that this outcome was not possible with TMS but that is simply untrue as I am living proof. I was a healthy, high functioning person at the time I went in to TMS although I was suffering from depression. After the treatment I came out with several health problems and serious cognitive impairments that have disabled me and changed my life forever.

    Please, please, please report any serious side effects to the FDA as I have.

    #34392

    springercali
    Participant

    Where did this idea that when your depression lifts from tms other issues such as anxiety may surface? Seriously where is the scientific evidence for this? I don’t believe that’s how your brain works, more likely I think this was created by psychiatrists or something to convince us that this is us and not the very powerful magnet shooting through our brains. The serotonin imbalance theory was another lie that stuck to convince us all that we were sick and hopeless. People need to know that a lot of these trials for tms machines were funded by neurostar and the companies producing them and are therefore heavily biased. Even the Cochrane institute reported that tms was ineffective compared to plecebo and adverse events were highly underreported. A man on this site just wrote that his wife ended her life because of this treatment, and my life was also destroyed. How many people are going to have to be harmed or die before they have tighter screening or warnings for this treatment? Just because something was FDA approved doesn’t mean it is necessarily safe. Stop telling us what we are feeling isn’t real. It is.

    #34405

    JamesHall
    Participant

    After some reflection on what I have seen on this forum I would like to compile some information on our symptoms and what treatment we received. This may shed some light on if this all from Neurostar treatments or there is some other factor that we share that may help us get help in the future or figure out what is happening to us.

    If anyone feels comfortable speaking up, please email me at jamiehalls2013@gmail.com.

    If you know anyone else who had been adversely effected by TMS, feel free to let them know as well.

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