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  • in reply to: Narcolepsy anyone? #50460

    itsmeinin
    Participant

    Unfortunately, i’m very familiar with narcolepsy. And in my experience i tend to react to things differently than people without narcolepsy, such as medications and anesthesia, so i guess it shouldn’t surprise me that I’ve been more tired from this treatment.
    I don’t like that i’ve gotten so much more tired that it has taken away everything in my life except for working and sleeping, and I don’t like that i wasn’t warned of that or any other side effect. I have to wonder if that is partly because they aren’t used to working with people who work full time. I would assume that by the time you’re in a position to be desperate enough to seek out TMS that you might not have been able to hold a job long before that point. I know i’ve been on the edge of not being able to many times. So i wonder if the reason they haven’t taken my “dip” as seriously as they should have because most of their other patients aren’t employed and can go home and nap. Because they can, they also might not be reporting their symptoms as it isn’t interrupting their lives and risking their livelihood like it has mine? This is a total guess though.

    in reply to: Narcolepsy anyone? #50458

    itsmeinin
    Participant

    Yes, I have narcolepsy and it is always diagnosed after a sleep study and in my case by a neurologist. Why do you ask?
    I am now 2 weeks past the 36th/last treatment of my first round of TMS. When I’m able to move around at home, the weather is good and I’m staying busy i’m ok (just ok), but when I try to work (I work from home at a desk job) i get slower and slower and more and more sad and hopeless. I’m not yet getting much better and am certainly not yet back to what my before-TMS-normal was.
    I did consult with my own psychiatrist that has nothing to do with the place where I’m receiving my TMS. He encouraged me to continue treatment. I was leaning that way anyway, so that’s what i plan to do.
    Thanks for your comment Marilyn

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