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@curious090 – personally, I am feeling a million times better. Unfortunately, this is not due to TMS. I did four rounds of TMS over two years; it didn’t stick for me.
I feel your pain! I too had a doctor who refused to take my calls, and I ended up reporting him to the NY medical Board
My advice would be to stop treatment with this man and find a new provider. There are other protocols and intensities they can try. In hindsight, I wish I would’ve stopped earlier.
My new TMS doctor said yes, of course TMS can cause anxiety if the brain is being over-stimulated.
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This reply was modified 3 years, 4 months ago by
TMS+You.
@msumak –
http://katherineheeg.com/
Katherine Heeg in New York City is who I used for CRM. Lifesaver. She does telehealth. She also has recommendations for CRM providers in the Austin area.Lisa H – CRM is covered partially by my insurance, yes.
My TMS doctor wanted me in bi-weekly for maintenance as well, but who can afford that? My insurance doesn’t cover maintenance either.
TMS helped, but on a surface level. Issues definitely came back. It wasn’t the cure-all TMS marketing made it out to be.
Google ‘Comprehensive Resource Therapy (CRM)’ providers in your area.
Good luck to you!Hello,
I’ve done three complete rounds of TMS over two years. Thousands of dollars and countless hours later, I can’t say I’m all better. But i was desperate to try.However . . . My psychologist told me that for patients like me, for whom TMS doesn’t “stick”
I should try CRM https://comprehensiveresourcemodel.com/crm-the-comprehensive-resource-model/
CRM helps put you back together if you’ve experienced long-time trauma (like me) which results in a profoundly depressed and anxious brain.
Four months later, CRM is making me feel whole in a way no other treatment has…..Worth a shot if TMS isn’t working for you. Best of luck ❤️Hello,
I’ve done three complete rounds of TMS over two years. Thousands of dollars and countless hours later, I can’t say I’m all better. But i was desperate to try.However . . . My psychologist told me that for patients like me, for whom TMS doesn’t “stick”
I should try CRM https://comprehensiveresourcemodel.com/crm-the-comprehensive-resource-model/
CRM helps put you back together if you’ve experienced long-time trauma (like me) which results in a profoundly depressed and anxious brain.
Four months later, CRM is making me feel whole in a way no other treatment has…..Worth a shot if TMS isn’t working for you. Best of luck ❤️TMS can cause activation/anxiety and hypomania, even in patients without a history of it. Ask your doctor to switch protocols to HIGH FREQUENCY RIGHT side TMS.
Hi NevadaLady,
I just read your post. I am currently undergoing bilateral TMS treatment. I feel similarly to you, and I found some anecdotal evidence that could perhaps help. I was poking around this site:
https://kickdepressionsass.com/is-tms-safe/ created by a man who had success with TMS. In one of his posts, he said he didn’t tolerate right-side treatment for anxiety (even though he had anxiety), and once he switched to left side only, he saw a dramatic difference (he felt his mood lift and experienced joy). I have 5 taper sessions left and I’m going to suggest left side only to my doctor. Just wanted to share in case this can help you.@junebeatle
Thank you, as always for your help. Im so happy to hear you can show up for your boys again!
My doctor’s office asked my insurance for 10 additional sessions for me, but I got twice denied. They are going to try a final time for an “expedited appeal,” but we don’t know how long that may take.
Because I showed some improvement throughout my initial round of 36, perhaps I should just wait and do another whole round. I’ve heard other people have to wait an arbitrary 90 days, next calendar year, etc.
It’s so upsetting because I feel TMS will work for me, but I cannot afford to pay out of pocket.
Thanks again for sharing your hopeful experiences.@hopeful53 – agree 100%
I am having the same experience as you, @pas02. I saw the TMS doc for 30 minutes during initial consult, once for left-side mapping, and once for right. I’ve communicated to the technicians during the Dip I was experiencing, as well as medication side effects. They told me they’d “let the doctor know” but the doctor himself seems too busy running his regular practice. TMS feels like it’s his side-hustle; if it works, great, if not, too bad…he’s not actively getting involved.
@junebeatle – May I ask you a question? My motor threshold changed by over 20% halfway through due to medication. However, now insurance is about to run out. Did you say the additional round of 36 helped you?
Too bad. Mine made all the difference!
@sunnybrook thank you! That’s hopeful 🙂 I have had a little relief so far, but not much! Thanks for your reply
Thank you.
The anxiety was the killer for me during the dip period. I wanted to crawl out of my skin. The depression was feeling like TMS was making me worse. However…both are dramatically better. I began bilateral treatments the other day too. Anxiety isn’t gone, but now I wake up happy to start the day instead of being filled with fear and nerves.I came out of it! After a few more sessions, my mood has lifted significantly. Technician told me it was the dip. It was rough, but I’m going to continue treatment.
Did you ever try right-side only?
@entenmk
Literally the same thing…very activated, distracted, insomnia, physical symptoms…a much different anxiety than what I’m used to. Some meds gave me those side effects (Wellbutrin, Zoloft) and I got off them. Anyway, you’re right about their way with words. I’ve been told repeatedly “as the cloud of deprsssion lifts, the anxiety rises to the surface” as if it’s been rehearsed like that.
So the right side didn’t help at all? Last week my doctor said he’d start doing both left and right this upcoming week.
I’m nervous; some say stick with it, it’s worth it – others like yourself regret their own tenacity. I’m sorry for you. What will you do now?@entenmk
I agree 100% – it SOUNDS plausible when the technician tells me my existing anxiety is “rising to the surface” but this is a markedly different feeling then the regular anxiety I am used to. What side effects do you currently have? They have suggested I start right-side as well this week. I agree the machine is definitely stimulating something. Maybe they can lessen the intensity.Thank you for sharing a positive story! Did you have uni-lateral or bi-lateral treatments? I’m only have left-side right now and it’s making me very activated and anxious.
Hello,
I had a very similar experience. My regular psychiatrist (not my TMS doctor) told me anxiety halfway through treatment may, paradoxically, be a good sign the treatment is working. It has been activating to me for sure, but she said it is a good sign, providing I can ride it out (reduce caffeine, exercise blah blah). Also I need to start treatment bilaterally. Right now apparently TMS is only FDA approved for major depression and not anxiety….which is very short sighted in my option since you rarely get one without the other.Yes! That’s what she said – it may increase motor threshold and the stronger pulses may make anxiety worse…something like that.
I wish they would’ve started me bilaterally from the beginning. Talk to me for five minutes and anyone can deduce I’m an anxious person. Right-side TMS is still considered off label (in New York at least), so I think they had to follow the FDA protocol for major depression first. Short sighted, since anxiety and depression typically go hand-in-hand.
Anyway, it sounds like you said you’re down to only 5mg now? That’s great progress! Hindsight is always 20/20. Maybe it took being on Valium with little relief to realIze you needed TMS? Maybe it lead you there? ❤️
Thank you for your well wishes!Thank you, @junebeatle
I agree – I always felt anxiety and OCD triggered my depressive episodes. My baseline is activated, so the left-side only has made me a ball of nerves.
My psych told me that, paradoxically, activation in the beginning is a sign that TMS is working and will rebalance, providing you can ride it out.
She also said that taking benzodiazepines during TMS can have rebound effects. Is Valium a benzo? She wouldn’t prescribe me Xanax to quell the anxiety brought about by TMS because it could make things worse.
Looking forward to starting bi-lateral this week!
Thank you again for your response.I am 37 y/o, and like most on the forum, have struggled with depression and anxiety for decades. I began TMS (left-side only) on Sept. 13; I’ve had 10 sessions since then. I tend to be more neurotic than depressed, although I vacillate between both. This past week, my anxiety has sky-rocketed. My TMS technician assured me that TMS doesn’t cause anxiety, but rather “as the cloud of depression lifts, the anxiety rises to the surface.” (I’ve heard that before.)
My question is: did right-side or bi-lateral treatments help anyone in this situation? I haven’t felt anxiety like this in years. I’d rather take the depression.
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This reply was modified 3 years, 4 months ago by
